I have found a new hero, her name is Claire, I am a US Marine and a Retired Police Officer, and just recently viewed on of Claires Videos on U-Tube, I became instantly in love with her, as Im sure many have. To face each day, Claire Wineland undergoes hours of breathing treatments. She grew up loving to perform and landed her first role inThe Music Manat 4 years old. In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. She decorated her hospital room, and posted inspirational messages on its walls. Claires parents learned to trust their independent and strong-willed daughter. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. Claire, who understood the importance of organ donation, was a donor herself. Its not about how you feel second to second, she said. A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. At the time of birth, she had the life expectancy of only 5 years old. Why a terminally ill young woman has changed her mind about living. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. The Foundation has funded more than 26 families till now. It's a reality of living with cystic fibrosis she's come to accept. She was 21 years old. I dont want to actually die. So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Despite facing a life-threatening disease, she always remained positive, smiling and motivated people with her speeches and activities. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. She died on Sunday September 2, 2018, after suffering a stroke following a double lung transplant. I'm willing to deal with anything.". Cystic fibrosis is a genetic condition with no known cure. Despite suffering from a critical illness, she maintained a positive attitude to life. [5] She enjoyed performing from a young age and appeared in The Music Man at age four. Wineland was a singer, artist, and composer. Cystic fibrosis did not define Claire Wineland. She listened to the risks and the long list of side effects and emerged unfazed. Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. Today, Claires Place Foundation continues to carry on Claires legacy. The cause of death was a massive. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. March 04, 2022 "Disability is not the word that should be used to describe what Claire had because she turned it into her platform. Youll be missed deeply. She sat in an educational meeting at UC San Diego Health's transplant center and diligently took notes.Revealed on her left ankle was a tattoo: the thumbs-up "Don't Panic" logo from "The Hitchhiker's Guide to the Galaxy. View this post on Instagram On September 2, 2018, she passed away peacefully, at the 'US San Diego Thornton Pavilion.' Her organs were donated to needy patients. Her foundation said she had died peacefully, surrounded by family. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. She once escaped from the hospital so she could attend a Bernie Sanders rally. La Jolla, California CNN . [3] The foundation offers both emotional and financial support through their Support Families Network andthe Extended Hospital Stay Grants program. Though there was only 1% chance of her survival, she miraculously came out of it after 16 days. On September 2, 2018, she passed away peacefully, at the US San Diego Thornton Pavilion. Her organs were donated to needy patients. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to theCystic Fibrosis Foundation. On Monday afternoon, her mother received word that Claire had already made a difference. Given the severity of the stroke and Claires advance directive, it became clear that it was time to let her go. Wineland stated she did not have the energy or the money to take the case to court. What happened in the Ukraine helicopter crash? A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. pic.twitter.com/BsTEFmquR7. Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. I didnt realize how much I didnt expect to live this long. Im grateful for the chance to keep being a person. The cause of death was a massive stroke she suffered soon after the transplant surgery. Dave Thomas Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Yeager posted a video of herself doing a happy dance with friends in the waiting room.But not long after the successful surgery, hope turned to fear. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. She needed financial help. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. In one of the last videos Claire posted, she went where she hadnt before. Claire's Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. She founded the non-profit Claire's Place Foundation to provide emotional and financial support to families living with cystic fibrosis. Last night at 6 pm- my dear friend and little soul sister -Claire took her last. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. Louis Zamperini Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. So grateful for everything this month. Claire Lucia Wineland (April 10, 1997 September 2, 2018) was an American activist, author, speaker and social media personality. Michael Jackson Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Claires foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. I don't spend any time thinking about the day that I'm cured, or the day that I'm healthier, and that's because I know that on a certain level, it doesn't matter. She took great care to decorate her hospital room so it felt and looked like home.Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care.Her father credits Claire with teaching him "to not be afraid of what hasn't happened yet" and to learn to "love what is. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Since there was no formal contract in place, she did not have any legal option too. "I didn't realize how much I didn't expect to live this long. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. Im just really overwhelmingly grateful for all of this. I want to see where it goes. Im grateful for the chance to keep being a person. We would like to show you a description here but the site won't allow us. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". Hap Moran Cause of Death, Age of Death, and Other Facts! Cystic fibrosis is a genetic condition with no known cure. The BBC is not responsible for the content of external sites. The medical team that tended to her became family. @larissaperoux We some cheese balls just cheesing it up. Wineland wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis and was a TEDx speaker.#ClaireWineland #death #Frostsnow Im grateful for my own head and for all the weird things in it. "Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughter's aura and her ability to lift up those around her.In 2017, Yeager recalled a conversation with Claire about death. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. Claire took the gift of life and her health seriously, but she didnt take herself too seriously. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. Due to no formal contracts over ownership of the project being in place, the company continued to profit from the project. Then came the call that offered new life. Her organs were made available for transplant. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents future if it didnt go well. Its a GO!! Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. Claire Wineland's death was caused by stroke. [11], On August 26, 2018, Wineland underwent a double lung transplant. On Monday afternoon, her mother received word that Claire had already made a difference. Claire was born with a severe disease-Cystic fibrosis (CF), a condition that affects breathing and digestion. Here are some ways. The Times-Picayune. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. Youll be missed deeply. She took great care to decorate her hospital room so it felt and looked like home. Magnolia Shorty Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! The BBC is not responsible for the content of external sites. Wineland miraculously came back to life. Search by Name. 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